Friday, November 26, 2010

THIS IS THE INFOMATION ON THE FIBRO AND CHRONIC FATIGUE CLINICS.

Friends;

I want you to have the information about the clinics I talked to you about.  They are on Facebook and the next link will take you to their Facebook page...

This next link will take you to that assessment that I told you about.  Take this assessment and they will e-mail back the report and what they have discovered.

This link is to their home page on the net.  Listen to the Director and founder and hear what he has to say.  Explore this site and look at what the patients have to say.

You don't know how discouraged I was this summer... But then I think you can.   That's when I noticed this Fibro and Chronic Fatigue Clinic on Facebook.  I went on their web page and posted something about men with Fibro.  This guy from New Jersey contacted me and said he didn't know any males with FM.  He had just started at the clinic and was fighting with pain.  He had retired a year ago from the New York Police Department.  He just couldn't keep up.   We have communicated ever week or so since.  He went through some tough times when they were killing off some of the crud in his system.  As bacteria and other invaders die off they give off deadly toxins into the blood stream.  These over whelm the liver and kidneys so it actually makes you sicker.  Once they are gone you really start feeling better.  This is at about six month and it's seems to be up hill from then on. 

They told me that they can take payments for a commitment of one year.  It's $500.00 per month or $6000 for a year.   This takes care of all the clinic visits, doctors appointments and most of the hepatic medicines.  There will be a separate charge for any lab work that is done by a outside lab.  I was told that it would not be more than $1,000.00 and that my Medicare will pay part of these cost.  On their site you can search for the closest clinic to you.  They currently have 14 clinics across the United States so you can find one closest to you.  You in Alaska  may have to come to the lower 48 to get help.

The Clinic in Las Vegas is only about 125 miles from our home and we can stay in at the Air Force Base Base Accommodations for a cheep rate.  We can also take our travel trailer and park it at the Air Force Base in their RV Park.  Las Vegas is the most cost effective place to fly into in the United States.  They keep the fairs low so people will come and gamble.  That means we can take advantage of that for our needs. 

We are going to be ordering a new travel trailer that is designed to work in the heat and cold weather.  That way we can bring it to Salt Lake City (300 miles one way) to the closest VA Hospital.  I want my own bed to sleep in when we are away.  This trailer will be well insulated and have extra heavy duty air conditioning and heating systems.  It also has a separate bedroom in the front with a bed that can be walked around and closets on each side of the bed.  Also a TV for evening watching.  The whole back of the trailer is the bathroom with skylight over the shower.  A regular toilet, sink and medicine cabinet.  There is also a closet for linen storage.  This trailer is made by Jayco and I have been researching them for the last three years.  I can only find one or two used ones.  The owners just don't give them up.  We are having things like a tank less water heater installed.  Plus all the extra insulation and covering under the unit.

I hope this helps you understand what the FFC Clinic is about.  But you must explore it and decide if it's right for you.  I will be posting to my blog, hopefully daily as to my progress and what they are putting me through to get better.  I pray that many will see my success and take the jump and get feeling better.  If worse comes and I don't get better I will also post that.  I have no connection with FFC and I have many friends and two sons that have FMS/CFS and I am hoping this is the best treatment.

Watch my Blog at: http://fmsjerrysblog.blogspot.com.   I also use Webmd(see site link on the right) as a place to get answers to medical questions.

I hope this helps you and in seven months you see a totally new me...

Jerry Booth

Wednesday, November 17, 2010

I AM STARTING TO HATE WINTER!

I guess that is why I moved to the desert southwest.  I HATE COLD WEATHER, people with Fibromyalgia/Chronic Fatigue know what I mean.  This week was a bad week, the weather changed several times and that put me in bed.  If you have arthritis then you know how I feel.  As the weather changes I get stiff and sore.  The only way that is comfortable is to stay in bed and keep warm as possible.

We will be heading north on Sunday.  They are to have snow up there which means that it will be colder than here.  I know that cold is relative... our weather here is still in the 60's in the daytime but after being above 100 then dropping to 60's it really feels cold. 

Take care and see you all later....

Saturday, November 13, 2010

This was a wonderful Saturday!

This was a wonderful day.  My aid come in five days a week and wakes me up.  Then she makes sure I take my medicines (25 tablets).  Then I shave and she helps me with my shower.  At this point I can't reach over my shoulder with my right arm, because of a rotator cuff tear.  We are going to wait till I have completed the program at the FFC, before we try surgery on this problem. 

Well on Saturday I can stay in bed as long as I like.  I usually get up before 11 AM because another aid comes to clean for us.  That person cleans the bathrooms (including steam cleaning our floors which are stone or tile.)  Then the disinfect things that I might touch so I don't get any more germs than necessary.  They also change our bedding for the week. 

My wife has several medical problems and is unable to get down on the floors to clean.  She has a replacement knee on the right and needs a replacement ankle on the left.

After the aid left I took a short nap and then we went to our son's house and I worked on getting the virus out of their computer.  Then home early....

We both are working on our computers and my service dog is sleeping at my feet.  I enjoy checking out Facebook to see what is happening in the lives of friends and family.

Well this is praying I am able to attend church tomorrow.  Then we will have lunch out.  This is my time to get out each week.  God bless you all and talk to you soon...

If you have questions about my illness or anything just post a note to me and I will try to answer it for everyone to see.  If it's private then it will stay that way.  Nite...

Friday, November 12, 2010

WOW WHAT HAPPENED TO ME...

As much as it might be hard for you to understand I had a really bad flare.  That is when the Fibromyalgia is really, really bad.  I have spent most of the month in bed daily.  I hate it when life is like that.. but that is the life you have to live if you have Fibromyalgia and Chronic Fatigue...

Only those who have Fibromyalgia will understand this.  I have slept 22 hours a day during this time.  My wife is back home with me and I am so glad for that.

Only a short time and I will be starting at the FFC Clinic in Las Vegas... January 3rd 2011.  I have been told by the clinic web page and many patients that it's at the sixth month that you start feeling like your old self... What ever that is??   We will be moving in June of this next year so I might be able to stay awake for this move.  The move here from Michigan 13 years ago, I slept through most of the packing and loading of the truck.  My wife took me to a hotel and friends helped pack our belongings in a 28' Rider truck.  Deborah drove the whole way from Michigan to Southern Utah.  My son and my service dog was with her.  I flew in a plane and was here about four days faster.

Well I will be back now hopefully.  I hate when I miss writing, but then the most important time will be when I am being treated by the Clinic.  I know that many are watching to see how I do... I have had this for so long, others want to see it work on me before they give it a try.