I woke up yesterday knowing that the weather was going to change. My body hurt and I spent the day in bed. Today (Monday 10/02/10) I feel about the same. I did get up for a bit because I had to return some phone calls. I was scheduled to go see my dermatologist on Wednesday, but I rescheduled that trip. For me to see my VA doctors I have to travel 300 miles one way. They do pay for my travel, but that kind of travel is hard on my system. Especially when it's wet weather outside.
I live in Southern Utah by choice. We moved here almost 13 years ago for my health. The climate here is almost perfect for me. We get about 7" of rain a year so that is nice. The sun shines 360 days a year, and that really helps me from depression. We live in the desert so in the summer it gets hot here. We have about two months of 100+ degrees weather. I just stay inside and my air conditioning make a nice climate for me. If I have to go out then it's in our truck which is air conditioned also. Our winters are mild, we have 50's and 60 degree weather during the day time in the winter. You may not know that the desert cools down about 30 degrees after the sun goes down. If you have lots of concrete then it will hold the heat.
My days run like this. I am in bed usually awake when my Aid comes in at 10am. She helps me with any thing like taking my blood pressure. Then most days I take a shower and she assist by washing my hair, and then my back. I continue the shower by myself after that. She has to stay in the room because, I have a habit of falling. After completing my shower I get my towel and dry myself off. Because I can't reach higher than my shoulder with my left arm she will dry my hair with another towel. Then she leaves the room so I can finish drying my legs and get partially dressed.
I am fighting a virus called folliculicis when has taken over my arms and legs. We not have medication that my Aide puts on for me. She does my arms and legs and we are finally seeing some improvement. If you have this (crud) as I call it you understand. I had a yeast infection in my gut and it took 6 years and lots of dollars to defeat it.
One of the counselors from FFC called me this morning just to see how I am doing. I am signed up on their web page and that is how she found me. She has called me several times in the last few months. Today I was so glad to schedule my first appointment.... I am so looking forward to having a life.
I am doing this blog so you can see my progress... I hope it will encourage you to get to one and get better. I have been in touch with others going through the program and they are very excited. This does cost. We decided to give up our home to be able to afford for me to go to FFC. We will be here for about another year then we will rent for a while. Our goal is to build a custom home for us with my needs in mind. We have had a design in our minds for many years now and I am in the process of sketching it so I can take it to an Architect to have it properly designed. We have several things that we want special. Like a walk in shower like we have now. Talk to you tomorrow.
