Friday, March 11, 2011

WELL THIS WEEK WAS WILD!!

     I got my drivers license on Wednesday and then drove to Salt Lake City.   I had an appointment with my MD on Thursday morning.  She was over whelmed by my progress.  She just didn't know what to say when I told her I had stopped the Vicodin on a daily basis and only used when I over did something.  I also told her that I had stopped 60mg of morphine.  Then I ask her to give me morphine in 30mg from now on so I could wean myself off of all the morphine in the next two months.  This is the first time I have seen her, that I didn't have a long list of thing that were wrong with me.  She did have me get a MRI of my C spine to see why I am having pain there.  I talked to her about the numbness in my hands and feet, but she didn't know what to make of it.

     It felt so good to have the freedom to drive anywhere I want to go.  I met a young man at the VA Hospital that has been seeing doctors trying to figure out what is wrong with him.  His symptoms were, pain in the muscle, foggy mind, no energy.... etc...   I told him it sounded like Fibromyalgia but he told me that he was in the first Golf war, the VA called that Gulf War Syndrome.  They treat it the same way as Fibro, with lots of medicines.   We had lunch out and talked to him, he said his wife had said that she thought she might have Fibro herself.  I have not heard of couples having Fibro or Chronic Fatigue.   I would love to hear from someone who, both spouses had FM/CFS.  

     I shared with him about the Fibromyalgia and Chronic Fatigue Center that I go to in Las Vegas.  I also want to hear from others that have gone to a FFC or are planning on going to one.  I am not paid by them but I know what a difference it has made in my life.  First of all it gave me hope, then it gave me back part of my life that I thought was gone for good.  I can hardly wait to see what will happen in the next nine months.

I will talk to you again soon...

Jerry