WELL THIS WEEK WAS WILD!!

     I got my drivers license on Wednesday and then drove to Salt Lake City.   I had an appointment with my MD on Thursday morning.  She was over whelmed by my progress.  She just didn't know what to say when I told her I had stopped the Vicodin on a daily basis and only used when I over did something.  I also told her that I had stopped 60mg of morphine.  Then I ask her to give me morphine in 30mg from now on so I could wean myself off of all the morphine in the next two months.  This is the first time I have seen her, that I didn't have a long list of thing that were wrong with me.  She did have me get a MRI of my C spine to see why I am having pain there.  I talked to her about the numbness in my hands and feet, but she didn't know what to make of it.

     It felt so good to have the freedom to drive anywhere I want to go.  I met a young man at the VA Hospital that has been seeing doctors trying to figure out what is wrong with him.  His symptoms were, pain in the muscle, foggy mind, no energy.... etc...   I told him it sounded like Fibromyalgia but he told me that he was in the first Golf war, the VA called that Gulf War Syndrome.  They treat it the same way as Fibro, with lots of medicines.   We had lunch out and talked to him, he said his wife had said that she thought she might have Fibro herself.  I have not heard of couples having Fibro or Chronic Fatigue.   I would love to hear from someone who, both spouses had FM/CFS.  

     I shared with him about the Fibromyalgia and Chronic Fatigue Center that I go to in Las Vegas.  I also want to hear from others that have gone to a FFC or are planning on going to one.  I am not paid by them but I know what a difference it has made in my life.  First of all it gave me hope, then it gave me back part of my life that I thought was gone for good.  I can hardly wait to see what will happen in the next nine months.

I will talk to you again soon...

Jerry

SOMETHING YOU WON'T BELIEVE!!

I don't know how to explain this except to come right out and state it...   I am BACK.   Over the last few weeks my mind has cleared from the fog!!  I am not 100% there, but anyone that knows me and sees me can see how my success with the program has been.  Lots of people tell me that they can't believe the difference in me.  I feel so much better than I did, I am not in pain all the time, unless I do something stupid.  Deb looked at me the other day on our way to Las Vegas and said" I am so glad you are back."  That was a really big step for me.  I talked with the doctor and he can't believe how far I have come since January 4th.

I have been able to stop taking the Vicodin (loratab) most of the time.  Only when I over do because I feel better do I need it.  I am also weening myself off the morphine and have dropped 60mg from my pill regiment.  I don't know how to explain it... I have started taking the supplements and have had lots of IV's since I started.  As you may know the Fibro Fog is one of the worse parts of the disease.  It's like you had a head cold and I ask you to do some complicated math problems.  My mind has cleared so much over the last two weeks.  The IV's I have taken are for pain and the second one is to clear the mind.  Well it's working....   The doctor and I though it would be a hard time coming because of the depth of what I have been thought.  This disease has thrown everything at me in the last 15 years.  Yet these doctors "saints" know what they are doing and have made a great change in me in this short time.  If it can work for me it will work for you. 

BTW if you do go to a clinic to get started, tell them that Jerry Booth sent you... I can use the discount on my account.

Knowing what and how I feel now I would tell you to get to the closest Fibromyalgia and Chronic Fatigue Clinic as soon as you can.  If it can make me feel this good it will help anyone.

NOW the really big announcement.  I will be applying for my drivers license in a couple of weeks!!!  I have not been clear enough to drive in over 15 years and now I am ready to start again.  Just in time because we just purchased a new 2011 Chevy Silverado this last two weeks.  I told Deb she would have to find something else to drive because the truck is mine.

I thank God ever day that I found FFC and that he provided a way for me to go and start on the road to recovery.  Also pray that the VA will recognise this treatment and start paying for veterans to have this treatment instead of giving guys like me $3,000.00 worth of pills a month.  This will save them lots in the long run.  Success is counted one person at a time and I would love to hear that your that person that has started on the road to change.  I don't expect to be healed from Fibromyalgia and Chronic Fatigue but if I am able to drive again then it is a giant step in the right direction.  I wonder how I will feel at the end of this year???   Please listen to me and get started on recovery right now.

I AM FEELING BETTER AND DOING TOO MUCH!

     The better I feel the more I want to do.  Of course we know what happens then, I get hurting for doing to much. It's hard when your feeling better not to do more than you should.  I have been able to give up the Vicodin and only use the morphine for pain.  I have less pain now than I did with both of them before starting the program.

     I have to learn to pace myself so I don't do more than I should.  I have been receiving chelation therapy (IV's) for pain and a second one to help with the brain fog.  I can feel the fog lifting a little at a time.  I am able to remember words better and can remember what happened in the near past much better than before.  This is a slow but sure progress, it's exciting to be able to think clearer.  I know that there are and will be days that I fall back.  We had a major weather change this last week and that hit me hard again.  That means I had to spend more time in bed because of the pain and tiredness.

     I am still very excited about this program and as I talk to others they say, "I am not that bad enough yet"  and I wonder how bad you have to get before going for help.  From my experience there is no other doctors that have come close to understanding Fibromyalgia and Chronic Fatigue than the doctors at the FFC.  I know my coming back to a better health will take longer because I have fought this for so long.  The sooner you get started with this the sooner you will feel better.

     This is not a cure, but they will make an individual plan to remove some of the symptoms that cause us so much pain and aggravation. I think a cure is coming some day, but if I can be out of pain and have a working immune system then I know I will feel better.

     We are going back again this week for more IV's and know that each one gets me that much closer.

Till next time,

Jerry

SORRY IT'S BEEN SO LONG BUT I HAVE HAD A MATTER I HAD TO ATTEND TO!

     Well today was another day at the FFC for treatment.  I did not go down last week because of nausea.  I was sick and though it was just something going around.  We found out it was one of the supplements that I was taking.  I stopped taking it and the nausea went away. 

     We went down on Wednesday and came back today.  I had muscle and brain IV's both days.  As I have said  the muscle treatment is to help the muscles develop new cells and to help with the pain.  The brain treatment is to put antioxidants and substance P into the brain.  We with Fibromyalgia are found to be low on substance P which helps the brain cells rebuild and talk to each other.

http://www.fibroandfatigue.com/fibromyalgia.html

     The link above is a one page article put out by the FFC about the problems we with Fibromyalgia have to deal with daily.  I like this article and it is clear how disabling this "CRUD" can be for us lucky people.

     I am feeling much better as far as pain is concerned.  I also feel that my thinking is improving and I don't get tired as much as I used to.  Keep watching this blog I think  you will see a marvelous change in my health in the next 11 months.

Till next time,

Jerry

WELL THE WEATHER IS NOT HELPING!

     I had lots of new things going on with my body this past week and now we have a weather front coming through.  I have been down most of the last three days.  I am not upset by this because I was told up front, that it would get worse before it got better.   Trying to jump start my immune system is a big job and it will take time.  Their concept is to get my immune system going then it and some medicines can fight the diseases that are running around in my system...   One of which is Epstein Barr,  this is a very bad version of mono.  These diseases are able to be in my body because my immune system is so compromised. 

     I am looking forward to feeling so much better but for now I will fight through this CRUD till we can get my body in shape to fight off the simple colds and more.  Just keep praying that I will get back to something like my old self. 

     I can tell of changes because of the lack of need for extra break through pain pills.  Also my mind is clearer now that it has been.  I keep asking if I am going to get a brain like the Tin man.  For the last many years my brain didn't work right and if I got tired it would just shut down.

Best to all of you... and God Bless you...

FMSJerry